Thats a great result, Torchy. Well done! It's not just the medication and treatment that fixed you up, your positive attitude had a great deal to do with it.Finally got the all-clear yesterday, the disease has completely gone.
Just got to take it easy for another couple of months then I can think of going back to work, though it will only be about three hours a day initially.
Consultant said he was pleased as my strain of leukaemia is not only rare but can also be extremely aggressive. It is the first case they have come across and so they were making the treatment up as they were going along, but it seems to have worked which is the main thing.
Still have to attend weekly clinics to keep an eye on my blood counts. My dependency on the steroids (I am currently a bit of a moon face) and the anti-rejection drugs is going to be slowly decreased to let my new immune system fight the good fight. As it happens I had a cold and a cough this week, the first since I was diagnosed last October and my system fought it well. It is down to the transplant now. As the consultant pointed out I had mine three months ago but you cannot be confident a transplant is successful for three years, so a long way to go.
Finally got the all-clear yesterday, the disease has completely gone.
Just got to take it easy for another couple of months then I can think of going back to work, though it will only be about three hours a day initially.
Consultant said he was pleased as my strain of leukaemia is not only rare but can also be extremely aggressive. It is the first case they have come across and so they were making the treatment up as they were going along, but it seems to have worked which is the main thing.
Still have to attend weekly clinics to keep an eye on my blood counts. My dependency on the steroids (I am currently a bit of a moon face) and the anti-rejection drugs is going to be slowly decreased to let my new immune system fight the good fight. As it happens I had a cold and a cough this week, the first since I was diagnosed last October and my system fought it well. It is down to the transplant now. As the consultant pointed out I had mine three months ago but you cannot be confident a transplant is successful for three years, so a long way to go.
How's everything going now @torchomatic ? Still all good with the blood counts? Back at work yet?
So, I’ve just stumbled across this thread. I knew you were ill Torch but didn’t know the exact details but having just seen this thread, I’m absolutely delighted that you’re beating this thing.
See, this forum is a funny place. I’ve not met any of you but there’s a few on here who I feel like I know quite well. Like brothers from other mothers whom I could easily have a beer with. You’re in that group Torch.
Keep the positivity up, keep being inspirational to others and I’ll hope to buy you a beer one day at a Cov match.
Right, I’m off to watch Norn Iron hopefully smash the Swiss in the WC Qualifier. Laters mate,
WM
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am i in that group?
toruchy i would forget work and relax,but if its something that would make you feel better then that is fine
Rather like a brother, you’re like that cheeky scamp of a cousin that is occasionally annoying but on the whole, a likeable chap. I’d have a beer with you ccfc4life. If you’re old enough to drink!
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Glad you are getting there Torch, bet it's going to be weird going back to work. How long has it been? About 18 months?
Last time I was at work was October last year, so it's been a while. In theory I am signed off until the end of March, but unfortunately, I have a mortgage to pay, so can't really stay off much longer. I did get full and half pay for a year, but at the end of this month I won't get anything, hence why I'm going back. My consultant says as long as I'm careful it should be OK. He's the one though who has said no more than three hours a day for two or three months, plus a day or two working from home.
I reckon he was on here more when he was at work full time !:woot:Seen you on here a fair bit recently @torchomatic , and you seem on good form, hoping that means things are still good. Coping ok with being back at work?
Seen you on here a fair bit recently @torchomatic , and you seem on good form, hoping that means things are still good. Coping ok with being back at work?
I reckon he was on here more when he was at work full time !:woot:
Hopefully with everything he’s been through he’s had a realisation that there’s more to life than the nonsense that goes down on here. And yes I do realise that I’m part of that nonsenseHaven't heard much from you lately torch. Hoping all is OK?
Well I just had a quick look and he posted on Friday, Saturday, Sunday, Monday and Tuesday.Haven't heard much from you lately torch. Hoping all is OK?
Must be his work days thenWell I just had a quick look and he posted on Friday, Saturday, Sunday, Monday and Tuesday.
Haven't been back any further than that, but his posting regime seems fine.
When I was working in an office I would only come on here because my computer was always freezing and the only website I could access on the entire World Wide Web while everything else was down was SkyBluesTalk. Everything else was frozen.Must be his work days then
Hi All
Yes, I'm still about, but not really been posting as much as I used to on here for some reason, not sure why. Anyway, will make an effort to post more. As for my "thing". All OK, nearly a year since transplant (4th May) and all going as expected. Still have to make regular Friday trips to Heartlands and as it was rare will have to be monitored closely for a couple more years, but hopefully it's all behind me now.
Excellent news, but please don't make the effort to post more.Hi All
Yes, I'm still about, but not really been posting as much as I used to on here for some reason, not sure why. Anyway, will make an effort to post more. As for my "thing". All OK, nearly a year since transplant (4th May) and all going as expected. Still have to make regular Friday trips to Heartlands and as it was rare will have to be monitored closely for a couple more years, but hopefully it's all behind me now.
Hi All
Yes, I'm still about, but not really been posting as much as I used to on here for some reason, not sure why. Anyway, will make an effort to post more. As for my "thing". All OK, nearly a year since transplant (4th May) and all going as expected. Still have to make regular Friday trips to Heartlands and as it was rare will have to be monitored closely for a couple more years, but hopefully it's all behind me now.
Back to swatting Wasps
Glad everything is OK, does that mean back to work as normal and no more lazing about?
Good to hear you are still on the mend. Going back to work starts to bring a bit of reality back.Well half and half really. From beginning of April I do three days at work, 9-4. WFH on a Wednesday and have every Friday off due to the consultant appts. Hope to increase hours further in September time, see how the frequency of appointments pan out.
Top stuff and positive news!Hi All
Yes, I'm still about, but not really been posting as much as I used to on here for some reason, not sure why. Anyway, will make an effort to post more. As for my "thing". All OK, nearly a year since transplant (4th May) and all going as expected. Still have to make regular Friday trips to Heartlands and as it was rare will have to be monitored closely for a couple more years, but hopefully it's all behind me now.
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